The EDA was created in 2012 by Genespoir, the French patient association for people with albinism, supported by the following scientific committee members:

  • Robert Aquaron, Marseille, France
  • Benoît Arveiler, Bordeaux, France
  • Glen Jeffery, London, UK
  • Barbara Käsmann-Kellner, Homburg, Germany
  • Lluis Montoliu, Madrid, Spain
  • Maria-Vittoria Schiaffino, Milan, Italy
  • Alain Taïeb, Bordeaux, France

1st EDA

October 27-28, 2012 – Paris, France

Local organizer: Genespoir

Final program

2nd EDA

April 5-6, 2014 – Valencia, Spain

Local organizer: ALBA

Final program

2nd EDA website

3rd EDA

April 7-8, 2016 – Milan, Italy

Local organizer: Albinit in collaboration with the Niguarda Ca’Granda Hospital

Final progam of the 3rd EDA

3rd EDA website

1st EDA
2nd EDA
3rd EDA